Prader-Willi syndrome is a rare genetic disorder affecting roughly 1 in every 15,000 births, causing an extreme and uncontrollable appetite that often leads to life-threatening obesity in children, along with cognitive disabilities, behavioral difficulties, and hormonal complications. There are only an estimated 10,000 to 20,000 people living with it in the U.S., and there is no known cure. This resolution supports designating May 15, 2025, as Prader-Willi Syndrome Awareness Day, and calls for better public education, earlier diagnosis, more research, and the development of new treatments and regulatory pathways for rare diseases like PWS.
Congressional Summary
This resolution supports the designation of Prader-Willi Syndrome Awareness Day. This is a rare genetic disorder that causes a variety of symptoms, including developmental delays and extreme appetite.
Details
- Congress
- 119th
- Chamber
- House
- Status
- summarized
- Action
- Introduced in House
- Action Date
- 2025-03-25
- Date Added
- 2026-04-09
- Source
- Congress.gov →
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