The Senate designated February 27, 2025 as Rare Disease Day, recognizing that over 30 million Americans live with one of more than 10,000 known rare diseases. The resolution highlights that while more than 882 drugs have been approved for rare diseases since the Orphan Drug Act passed in 1983, roughly 95% of rare diseases still have no FDA-approved treatment. It calls for continued support of research, early diagnosis, and awareness efforts.
Congressional Summary
This resolution designates February 27, 2025, as Rare Disease Day.
Legislative Subjects
Details
- Congress
- 119th
- Chamber
- Senate
- Status
- summarized
- Action
- Introduced in Senate
- Action Date
- 2025-02-27
- Date Added
- 2026-04-09
- Source
- Congress.gov →
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