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SRES-104Senate2025-02-27Health

A resolution designating February 27, 2025, as "Rare Disease Day".

YourVoice.Now Summary

The Senate designated February 27, 2025 as Rare Disease Day, recognizing that over 30 million Americans live with one of more than 10,000 known rare diseases. The resolution highlights that while more than 882 drugs have been approved for rare diseases since the Orphan Drug Act passed in 1983, roughly 95% of rare diseases still have no FDA-approved treatment. It calls for continued support of research, early diagnosis, and awareness efforts.

Congressional Summary

This resolution designates February 27, 2025, as Rare Disease Day.

Legislative Subjects

Commemorative events and holidaysHealth promotion and preventive careMedical researchMedical tests and diagnostic methods

Details

Congress
119th
Chamber
Senate
Status
summarized
Action
Introduced in Senate
Action Date
2025-02-27
Date Added
2026-04-09