This bill has advanced since we wrote our summary.
Current stage on Congress.gov: Agreed to Senate.
The Senate formally designated February 28, 2026, as Rare Disease Day, marking the 43rd anniversary of the Orphan Drug Act and recognizing that more than 30 million Americans live with one of over 10,000 known rare diseases, approximately 95 percent of which still have no FDA-approved treatment. The resolution — agreed to by the Senate — recognizes the importance of raising awareness, encouraging early diagnosis, and supporting research toward effective treatments and cures. It is a symbolic designation and does not appropriate funds.
Congressional Summary
This resolution designates February 28, 2026, as Rare Disease Day.
Legislative Subjects
Details
- Congress
- 119th
- Chamber
- Senate
- Status
- summarized
- Action
- Passed Senate
- Action Date
- 2026-02-26
- Date Added
- 2026-04-10
- Source
- Congress.gov →
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